Coping with Autism: My Perspective, Part 2

(Here’s a link to the first half)

“Am I really Autistic?”

mindmazeThis is a question that plagued me for a number of years. What if the diagnosis was faulty? What if I was just… terrible at socialising and a bit eccentric? Wouldn’t it be awful if I was making a claim that was entirely false?

I very much doubt that these thoughts are unique to me. It may sound insensitive to those much worse off than I, but sometimes I’ve found myself wishing that my symptoms were a little more obvious. If they were more obvious, surely they’d be easier to understand? Well, even if that were true, it’s not exactly a healthy thing to wish for. The fact is that people on different points of the Autistic Spectrum face different sets of challenges. One of my personal challenges, for a long time, was the fear that I was lying to myself and others.

If I really am autistic, why do people not notice? Sure, I struggle with some things that other people find easy, and excel in some things that others find difficult, but to some extent, couldn’t you say the same thing for everybody? Did I just latch on to a label to escape?

The source of that last doubt is not my own mind. As I’ll discuss at the conclusion of this half, it began with a close family member, and then became internalised. Out of all of my doubts, it’s this one that really clawed at me. Did I try to escape responsibility for my behaviour, and foist the blame off on some nebulous disorder?

I have gotten to the stage where I say say this, boldly and clearly: I did not. But, the hilarious thing is that the question was completely irrelevant in the first place. People don’t typically respond to the unknown by offering leeway. It just doesn’t work like that. It is, in fact, the very opposite of human nature. It is the exception, and not the rule. The benefit of the doubt is not so trivially obtained.

 

In Employability

employment

Allow me to demonstrate with the most clear-cut of my recent personal experiences. A few months ago, I got a job at KFC. I made a couple of posts about it on this blog. It’s safe to say I had to jump through some hoops to be one of the new batch of recruits, which I suppose is unsurprising in the current job market. In the process, I let them know I was autistic, simply because I thought it would be a bad idea to conceal it.

What I have not mentioned on this blog, or indeed to all of my immediate family, is that I was fired a couple of weeks in.

For slacking? Nope, I worked as hard as I could. For a big slipup? Nope, the slipups were few and minor. For bad customer service? I was commended for my customer service, it was my biggest strength. No, when I was taken into the back at the end of that shift and was unceremoniously told that I’d been let go, the reason given was simply this:

“You’re not picking it up fast enough.”

Don't let that smile fool you. The colonel is a cold, hard businessman.
Don’t let that smile fool you. The colonel is a cold, hard businessman.

Up until this point, I thought I’d been doing quite well. With the effort I’d put in to learning the till and juggling orders, I was picking things up faster than I would usually. But therein was the problem: I was judging by my own standards. How could I expect my employers to do the same? How much did they even know about Autism? Here’s the real question: did it matter? Of course not. They wanted an employee that could quickly give a return on the investment inherent in training them. I was not such an employee, so I wasn’t worth the time or money.

Could I have protested, which quivering lip, “B-but I have Asperger’s”? Ha, I doubt that I ever could. I’ve developed quite the aversion to pulling that card. Assuming that experience had not already seeded that aversion in me, though, would it have helped? I highly, highly doubt it. They already knew, after all, and regardless of how much they knew about it, the decision was made.

It was hard to take solace in the fact that I tried my best when this simple fact was glaring me in the face: I couldn’t maintain a minimum-wage job for more than a couple of weeks. Funnily enough, when doing a bit of research for this piece, I came across a list of “Bad Jobs for People with High Functioning Autism or Asperger’s Syndrome”. First item on the list: cashier. Again, cold comfort.

 

In Dealing with the Stigma

OLYMPUS DIGITAL CAMERA

 

Another behaviour I’ve learned from experience is to avoid using the term “Asperger’s Syndrome” if at all possible. I still remember bringing it up for the first time on an online message board, if only for the downright volcanic response I got. It’s not exactly surprising that such vitriol was found on the internet, given the general principle that a normal person given anonymity and an audience becomes a menace to society. Still, the things that were said had their root in commonly held conceptions that I’ve seen repeatedly since then.

The stigma attached to Asperger’s is twofold, as I have seen it. In general terms, the twofold perception is this:

1) Asperger’s Syndrome is something that shut-ins diagnose themselves with.

2) Asperger’s Syndrome is basically a fake mental illness.

The problems this perception causes are pretty self-explanatory. To anyone holding this view, there are two layers of doubt to break through. First, the doubt of a person’s claim to having Asperger’s Syndrome. Second, the doubt of the validity of Asperger’s Syndrome itself. Whether there is any precedent to the first assumption – whether there are people who ‘self-diagnose’ Asperger’s – is utterly moot. Assumption is assumption. Trivialisation is trivialisation.

Even when such things are said in jest – a far more common personal experience – they are equally harmful if not more so. It’s not funny. “Ass-Burgers” is not a clever joke, no matter how many Americans seem to pronounce it that way. I realise that being so stonefacedly serious is out of character for me. It is for good reason. I have history in this matter.

Yes, it’s a shame that I default to saying “Autistic” rather than “Asperger’s”. I shouldn’t have to, but I feel like I do. I hope that’ll change.

 

In Growth and Personal Progress

progress

“I never would have guessed!”

This is by far the most common response I get upon telling someone that I’m autistic. Nowadays I just take it as a compliment, but it used to be much more of a two-sided coin. On the one side, when I first started getting comments of this kind I was somewhat flattered, but on the flipside, these remarks led me to extrapolate that people had begun to see me as more ‘normal’. And, believe it or not, this worried me greatly. Why was I getting better? Autism isn’t something that can just be cured or recovered from. I couldn’t just… not have it anymore, right?

Of course, this led to renewed doubts that I had it in the first place. No more, though: being autistic doesn’t mean that it’s impossible for me to progress in those areas in which I struggle. When I cast my mind back to my fourteen-year-old self, I can’t believe how far I’ve come. There were times where I was the butt of a joke and completely unaware. I barely had any friends; those people I spent time with I would now consider as merely tolerating my presence, even though I was oblivious at the time. Hindsight, huh.

Even though Autism should be taken seriously, it should also not be treated like a cage. I think the real balance here is in trusting in my competence while being aware of my limitations. By all means, challenge me. I may struggle with some things, but that doesn’t mean I should be entirely withheld from them and deemed eternally incapable. If I just gave up on being social because I wasn’t very good at it… well, who would I even be right now? Trust me, I would be an entirely different person, and probably not much fun at all to talk to.

 

In Familial Tension

Family

Now that I’ve come to writing this part, I’m more than a little hesitant. I doubt I’ll talk about this at much length, and I certainly won’t be very specific. Suffice to say that a particularly close family member does not accept that I have autism. They were the origin of the idea that I was trying to hide behind a label.  They are the most prevalent source from which I have heard the moronic “ass-burgers” joke. They are one of the main reasons I’ve come to develop such strong feelings on this subject.

I love them a whole lot, and I know that they love me a whole lot too. They have nothing but the purest and noblest of intentions. They are one of the people who care most about me. They’ve given me so much. And yet, I feel like my relationship with them is stained. The bond of familial trust that should be there is just… not. It’s gone. Out of all of my family, I feel I can confide in them the least. I can’t live with them or even near them. Even the idea of spending more a week with them is just a little bit scary. I can’t blame that all on this issue, but it’s a huge part of it. Refusing to acknowledge such a huge part of what makes me who I am, no matter how well-meaning, is relationship poison. I couldn’t even work up the nerve to tell them I got fired. Upon being asked how work is going, I lied. Twice. It’s entirely likely they’ll find out through this article. They don’t deserve that, and yet I can’t say it to them. I can’t rely on them to be understanding when they don’t take the whole picture into account. I can’t even articulate these feelings through conversation the way I can through text. I just can’t.

Again, I am not the only one in this situation. One of my best friends from my mission is also autistic (higher on the spectrum than I), and also has a close relative who refuses to accept the reality of his condition. To be honest, I haven’t yet talked with him very thoroughly on the subject. It came up and turned out to be another thing we have in common, and then we quickly moved on to something else. This is the first time I’ve tried to write about it at any length. It feels kind of awful to delve into. No wonder we haven’t discussed it much.

You know what, speaking of moving on…

 

In Social Life and Relationships

loneliness

I saved this particular aspect of my condition for last because, despite my progress, this is the area where I face my most frequent struggles. Yes, as I mentioned, I have come a long way in socialising. Talking to perfect strangers on the street for two years will do that for you. I still feel a world away from everyone around me. There’s always something missing, but I have no clue how to get it.

This feeling of not belonging keeps coming back. It comes especially strong when I attend conventions and gatherings with other people my age. It’s what prompted me to write this article in the first place. That Saturday when I finished FSY, I departed with an overwhelming feeling of loneliness. I felt like my fellow counsellors didn’t give a crap whether I lived or died.

And you know what that feeling was? Untrue. I know it was, and I knew it was, even at the time. Regardless, in my struggle to be noticed and loved by many, I often lose sight of those good friends I do have. Then I exaggerate what I perceive to be negative responses in others, and all of a sudden I’m down in the dumps. I’m not trying to belittle these feelings, I’m trying to deconstruct my own thought process. Although I do exaggerate, I can never entirely be sure how much of my exaggerations are based in fact. The thought of these ideas being even partially correct terrifies me.

I wish I could pinpoint what these difficulties are. If I knew what I was missing, you can bet I’d do my utmost to emulate it. If I knew what I was doing wrong, I’d try my hardest to correct it. The major part that I can identify is the the same subject that I refrained from discussing in the previous section: my shoddy name memory. Here’s a recent personal experience which demonstrates some of the social problems that Autism can cause – it demonstrates the name memory aspect particularly well.

A month or two ago, I was walking back from shopping, and was nearing my flat when I felt a tap on my back. I turn around to see a familiar face, but… goodness. Where do I know her from? What’s her name? I can’t just guess. That’d look ten times worse for me if I got it wrong. Crap. I wasn’t prepared for this, I came out to get some shopping. A test of memory  and a conversation were not on the cards! Crap. Crap crap crap crap crap. Uhhhhhhhhhh….

Such was my thought process as we proceeded to have our short but incredibly awkward conversation. From the way she later paraphrased my side, I came off incredibly cold and dismissive. Nothing could have been further from my intentions. I was just trying to figure out who she was and how I knew her. The fact that I had forgotten her name didn’t mean that I didn’t care. In fact, as I realised to my horror the moment I stepped into my flat, I’d registered her name perfectly well- quite an uncommon occurrence after only a few conversations. I just couldn’t pull it out at that moment of pressure. Additionally, while I was trying to deal with the problems I could notice, she was seeing the problems that I couldn’t. I’m just not conscious of my irregular behaviour sometimes. On occasion I hear about things I’ve done in the past and they completely mystify me. Who would do that? Well, I would, without any immediate awareness that I’m acting strange. As for this occasion, I immediately messaged her on Facebook to apologise, but to some extent the damage was already done.

autismheartAs for relationships of the romantic variety… well, I dated for the very first time on New Year’s Day this year. I’ve been on seven or eight dates since then, so I can’t say an awful lot about how autism affects this important part of my life – after all, I’m sure a lot of the issues I face could be said of many with the same amount of dating experience. Give me more time… Lllllllllladies.

Alright, alright, there’s one thing I’ve noticed, if only because it has an impact on my general social life too. I struggle with showing signs of affection. I don’t have a feel for when it’s natural, so I either don’t do it at all or I take a wild guess as to when it’s appropriate. I mean things like physical contact, even in cases where I’m simply trying to be supportive or reassuring. It’s not like I’m adverse to it; quite the opposite, in fact. I just don’t know when it’s OK. I’m bad at reading those cues.

Lllllllllladies? Wait, hang on, what am I even saying here. Goodness, let’s wrap this up.

 

In Conclusion

Aspergers

Well, such is the light and the heavy of the challenges I face as a result of being autistic. Thank you for taking the time to read. Hopefully, in dissecting my own personal experiences and feelings – some of them quite personal in nature – I’ve been able to give you an idea of a handful of the obstacles that Autistic people face. Especially, of course, those with asperger’s syndrome, as I can’t speak much for those higher on the spectrum. Simply understanding these issues, and spreading that understanding, will do a great deal for anyone you know who shares these things in common with me.

If you yourself are autistic, perhaps you’ve identified something about yourself that you never were able to place your finger on before. As often happens when I write this kind of article, I’ve discovered some important things myself. As far as advice goes… Well, I can only speak from experience, and so I can point to three big steps in my personal development from which you could possibly gain some ideas. I’ll list these events in chronological order:

1) I started college and made some actual, honest-to-goodness friends. This one’s not necessarily easy to replicate for everyone, since it inherently depends on other people. The best place to look, though, is wherever there are probably people with the same interests. Common ground is valuable for anyone as far as developing friendship is concerned, but for people with social difficulties it’s almost vital.

2) I did two years of missionary service, and in doing so faced some of my biggest challenges head-on. Now, as much as I’d highly recommend it, I know not everyone’s going to go serve a mission. Still, finding something that’s doable yet highly challenging can really help in conquering fears.

3) I started this blog. Boy, is self-expression useful. Finding a productive and enjoyable hobby and sharing it with others can edify all involved, especially the one sharing.

That’s really all I have to say, for now at least. I really hope that you found the read enjoyable and educational, and that you pass the link on to others. Social Media has a lot of issues, but this is an case in which it can be a monumental cause of good.

-Jesse (@BackBlogGuy)

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7 thoughts on “Coping with Autism: My Perspective, Part 2

  1. I have a 10 year old son with Aspergers and ADHD…he is high functioning but a bit hit and miss…your blog has opened my eyes to what may be going off in side his head…thank you…good luck and keep blogging xxx

    1. Thank you! I’m also planning on writing a more positive piece about autism. There may be challenges, but even though I have my low points I wouldn’t change if I had the choice!

  2. I have a son with Level Two Autism, formerly called PDD-NOS or High Functioning Autism. I have another son that has a lot of the characteristics of autism but does not have it. Several of my nephews are on the spectrum and I, myself, am very close to the criteria of Aspergers. I found your article fascinating, especially Part One. In part Two you spoke of not recognizing faces and that is something I struggle with. It is often very embarrassing for me. I blog, mostly about my son, but recently about myself. If you would read it and tell me what you think I’d sure appreciate it. http://quirks-and-chaos.blogspot.com/2014/08/a-look-inside-black-and-white-mind.html

    1. Thank you for sharing, it was a good read!

      You talked about learning and emulating those things that come naturally to everyone else in social situation, and that’s something I can very much relate to. As I said, the most common reaction I get when I tell people I’m autistic is one of surprise. For the most part, I hide my social issues pretty well, even if at times it feels like I’m missing that vital piece of the puzzle that more skilled socialisers seem to have.

      With the things you said about facial recognition, I was really surprised at how much you share in common with me. For instance, yesterday I walked right past a couple of friends, and wasn’t made aware of it until I met them later on in the day. How did I miss them if they’re friends? Well, I’m used to seeing them in suits. Also, you mentioned making facial comparisons that other people just don’t see when you mention it to them. Wow, I do that all the time! Mostly, though, I tend to compare people’s faces to celebrities. People’s reactions range from “… yeah, I can kiiind of see it”, to “what on earth are you talking about?”.

      One last thing, in relation to some of the things you said and in particular this part:

      “I do not have autism. I have a great imagination, a sense of humor, super eye contact, and no problems with communication. I have extremely active empathy skills.”

      Having autism and having any of those traits are not mutually exclusive. If I were to talk about those same things, it would go something like this:

      “I absolutely have autism. My imagination is one of my greatest assets, I plan to make a career based partly on my sense of humour, I overcame any eye contact issues in my early teens, and I enjoy communicating so much that I frequently volunteer to speak publicly and teach lessons. I empathize the crap out of people.”

      Remember also that autism is broad, and not everyone exhibits the same characteristics. I don’t know you, and it’s certainly not within my qualification or jurisdiction to make any diagnosis, but I would suggest for you to get a professional’s opinion, if you haven’t already.

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